Understanding the Nuances of Autism Labeling: Identity First vs. Person First

When discussing autism and how to describe it, people often use different terminology to express similar ideas. This can lead to confusion and misunderstandings. For example, if someone concludes that they do not have autism after medical checkups, their stance is quite straightforward. However, when it comes to understanding the perspectives of those living with autism, the language used can significantly impact how they are perceived.

Choosing Language: For example, one might say, 'I am autistic,' while another might reclaim the term, saying, 'I do not have autism.' This may seem contradictory, but it highlights the complexity of personal experiences and preferences.

Identity First or Person First?

The choice between identity first and person first labeling is a contentious one. The autistic community has largely embraced identity first language to depathologize autism and align with the approaches of other disability communities, such as the deaf community. This move emphasizes the lived experience and identity of the individual.

However, professional communities often mandate person first language. This preference for 'a person with autism' or 'a person on the spectrum' is aimed at emphasizing the personhood before the condition. This approach is often seen as more inclusive and less stigmatizing.

Contextual Differences

Correctly using the language preferred by each individual is crucial. One should always follow the preference of the person they are interacting with. This may mean using identity-first language, such as 'autistic person,' or person-first language, such as 'person with autism.'

It's worth noting that individual preferences can vary widely. For some, 'autistic' is embraced as a part of their identity, while for others, terms like 'person on the spectrum' feel more reflective of their specific conditions and experiences. It’s important to respect these choices, even if they differ from our own perspectives or experiences.

Empowerment through Language

Language matters deeply. It not only shapes the way we think about autism but also how others view and interact with autistic individuals. Embracing identity-first language acknowledges the intersection of the individual's identity and their condition, moving away from the medical framework that has often pathologized autism.

For instance, my nephew, who has been diagnosed with autism, commonly uses the term 'autistic' to describe himself. This aligns with the autistic community's perspective on embracing the term. By using language that reflects his identity, he is empowered in his journey and can share his experiences openly without fear of judgment or misunderstanding.

Navigating Different Contexts

Codeswitching between contexts and settings is sometimes necessary. In some social or professional settings, using person-first language may be more appropriate, while in more intimate or community settings, identity-first language can be more welcoming and validating.

For example, in a professional environment, a therapist might use 'a person with autism' to highlight empathy and understanding. In a community setting, an autistic individual might prefer 'autistic,' as it emphasizes shared identity and experiences.

Ultimately, the goal is to foster an environment where everyone feels respected and valued. By being aware of and adopting the language preferences of those we are communicating with, we can contribute positively to the conversation around autism and foster greater understanding and acceptance.